A Caregiver’s Bill of Rights

Caregiver Self-Care Gets Lost

The Caregiver’s Bill of Rights was written by Jo Horne, author of Caregiving: Helping an Aging Loved One. With good reason, Horne’s bill of rights grew a life of its own. Life as a family caregiver comes with an overwhelming amount of responsibility. As a result, caregivers can find themselves swimming in a sea of stress and overwhelm. Of the 53 million caregivers in America (one in five adults), 23 percent find it hard to take care of their own health. Consequently, caregiving has made their own health worse. (AARP Caregiving in the US 2020)

Recruiting Support

Understandably, caregiver self-care gets lost in the mix. However, maintaining fitness, nutrition, mental health, relationships, social life, and all of life’s “normal” elements is important. At least to some degree. The best way to accomplish that is to recruit support from family, friends, and outside organizations. It may seem easier to “just do it yourself” sometimes, but I can tell you from experience, setting the stage for help is a game changer! There are many ways to do this. Here are our favorites:

Keep a running list of tasks others can help with. When someone asks how they can help, send them the list. They will chip in where they feel most comfortable.
Make a visitation schedule and ask family members and close friends to choose a slot. While they are visiting with your loved one, take a break and use the time for YOU!
Take advantage of community resources. Organizations like Meals on Wheels, adult daycares or senior centers, respite programs, and other community resources can help your loved one maintain some independence. This is a win for them and for you! To find community resources in your area, your local Area Agency on Aging is a good place to start.

Caregivers Have a Right to Self-Care

Print this for yourself and a friend. AND share it with other family members as a reminder that you need their support.

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Disclaimer: The content on this site is meant for general informational purposes and should not be considered professional advice. While we strive for accuracy, we recommend consulting experts for specific guidance. We are not responsible for any decisions made based on this information.